Title |
Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients? [Perspectives]
|
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Published in |
The International Journal of Tuberculosis and Lung Disease, June 2012
|
DOI | 10.5588/ijtld.11.0635 |
Pubmed ID | |
Authors |
R. Zachariah, A. D. Harries, S. Srinath, S. Ram, K. Viney, E. Singogo, P. Lal, A. Mendoza-Ticona, A. Sreenivas, N. W. Aung, B. N. Sharath, H. Kanyerere, N. van Soelen, N. Kirui, E. Ali, S. G. Hinderaker, K. Bissell, D. A. Enarson, M. E. Edginton |
Abstract |
The words 'defaulter', 'suspect' and 'control' have been part of the language of tuberculosis (TB) services for many decades, and they continue to be used in international guidelines and in published literature. From a patient perspective, it is our opinion that these terms are at best inappropriate, coercive and disempowering, and at worst they could be perceived as judgmental and criminalising, tending to place the blame of the disease or responsibility for adverse treatment outcomes on one side-that of the patients. In this article, which brings together a wide range of authors and institutions from Africa, Asia, Latin America, Europe and the Pacific, we discuss the use of the words 'defaulter', 'suspect' and 'control' and argue why it is detrimental to continue using them in the context of TB. We propose that 'defaulter' be replaced with 'person lost to follow-up'; that 'TB suspect' be replaced by 'person with presumptive TB' or 'person to be evaluated for TB'; and that the term 'control' be replaced with 'prevention and care' or simply deleted. These terms are non-judgmental and patient-centred. We appeal to the global Stop TB Partnership to lead discussions on this issue and to make concrete steps towards changing the current paradigm. |
X Demographics
Geographical breakdown
Country | Count | As % |
---|---|---|
United States | 4 | 18% |
Switzerland | 3 | 14% |
Peru | 1 | 5% |
Mexico | 1 | 5% |
India | 1 | 5% |
Kenya | 1 | 5% |
United Kingdom | 1 | 5% |
Paraguay | 1 | 5% |
South Africa | 1 | 5% |
Other | 2 | 9% |
Unknown | 6 | 27% |
Demographic breakdown
Type | Count | As % |
---|---|---|
Members of the public | 18 | 82% |
Practitioners (doctors, other healthcare professionals) | 2 | 9% |
Science communicators (journalists, bloggers, editors) | 1 | 5% |
Scientists | 1 | 5% |
Mendeley readers
Geographical breakdown
Country | Count | As % |
---|---|---|
South Africa | 4 | 2% |
Norway | 2 | 1% |
United States | 2 | 1% |
India | 1 | <1% |
Brazil | 1 | <1% |
Cambodia | 1 | <1% |
Peru | 1 | <1% |
Unknown | 156 | 93% |
Demographic breakdown
Readers by professional status | Count | As % |
---|---|---|
Researcher | 45 | 27% |
Student > Master | 23 | 14% |
Other | 16 | 10% |
Student > Ph. D. Student | 14 | 8% |
Student > Postgraduate | 12 | 7% |
Other | 36 | 21% |
Unknown | 22 | 13% |
Readers by discipline | Count | As % |
---|---|---|
Medicine and Dentistry | 67 | 40% |
Social Sciences | 25 | 15% |
Nursing and Health Professions | 10 | 6% |
Agricultural and Biological Sciences | 10 | 6% |
Biochemistry, Genetics and Molecular Biology | 4 | 2% |
Other | 26 | 15% |
Unknown | 26 | 15% |