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Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients? [Perspectives]

Overview of attention for article published in The International Journal of Tuberculosis and Lung Disease, June 2012
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About this Attention Score

  • In the top 5% of all research outputs scored by Altmetric
  • Among the highest-scoring outputs from this source (#44 of 2,524)
  • High Attention Score compared to outputs of the same age (96th percentile)
  • High Attention Score compared to outputs of the same age and source (97th percentile)

Mentioned by

news
1 news outlet
blogs
1 blog
policy
1 policy source
twitter
22 X users
facebook
5 Facebook pages

Citations

dimensions_citation
56 Dimensions

Readers on

mendeley
168 Mendeley
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Title
Language in tuberculosis services: can we change to patient-centred terminology and stop the paradigm of blaming the patients? [Perspectives]
Published in
The International Journal of Tuberculosis and Lung Disease, June 2012
DOI 10.5588/ijtld.11.0635
Pubmed ID
Authors

R. Zachariah, A. D. Harries, S. Srinath, S. Ram, K. Viney, E. Singogo, P. Lal, A. Mendoza-Ticona, A. Sreenivas, N. W. Aung, B. N. Sharath, H. Kanyerere, N. van Soelen, N. Kirui, E. Ali, S. G. Hinderaker, K. Bissell, D. A. Enarson, M. E. Edginton

Abstract

The words 'defaulter', 'suspect' and 'control' have been part of the language of tuberculosis (TB) services for many decades, and they continue to be used in international guidelines and in published literature. From a patient perspective, it is our opinion that these terms are at best inappropriate, coercive and disempowering, and at worst they could be perceived as judgmental and criminalising, tending to place the blame of the disease or responsibility for adverse treatment outcomes on one side-that of the patients. In this article, which brings together a wide range of authors and institutions from Africa, Asia, Latin America, Europe and the Pacific, we discuss the use of the words 'defaulter', 'suspect' and 'control' and argue why it is detrimental to continue using them in the context of TB. We propose that 'defaulter' be replaced with 'person lost to follow-up'; that 'TB suspect' be replaced by 'person with presumptive TB' or 'person to be evaluated for TB'; and that the term 'control' be replaced with 'prevention and care' or simply deleted. These terms are non-judgmental and patient-centred. We appeal to the global Stop TB Partnership to lead discussions on this issue and to make concrete steps towards changing the current paradigm.

X Demographics

X Demographics

The data shown below were collected from the profiles of 22 X users who shared this research output. Click here to find out more about how the information was compiled.
Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 168 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
South Africa 4 2%
Norway 2 1%
United States 2 1%
India 1 <1%
Brazil 1 <1%
Cambodia 1 <1%
Peru 1 <1%
Unknown 156 93%

Demographic breakdown

Readers by professional status Count As %
Researcher 45 27%
Student > Master 23 14%
Other 16 10%
Student > Ph. D. Student 14 8%
Student > Postgraduate 12 7%
Other 36 21%
Unknown 22 13%
Readers by discipline Count As %
Medicine and Dentistry 67 40%
Social Sciences 25 15%
Nursing and Health Professions 10 6%
Agricultural and Biological Sciences 10 6%
Biochemistry, Genetics and Molecular Biology 4 2%
Other 26 15%
Unknown 26 15%
Attention Score in Context

Attention Score in Context

This research output has an Altmetric Attention Score of 35. This is our high-level measure of the quality and quantity of online attention that it has received. This Attention Score, as well as the ranking and number of research outputs shown below, was calculated when the research output was last mentioned on 08 July 2022.
All research outputs
#1,137,602
of 25,374,647 outputs
Outputs from The International Journal of Tuberculosis and Lung Disease
#44
of 2,524 outputs
Outputs of similar age
#6,076
of 179,216 outputs
Outputs of similar age from The International Journal of Tuberculosis and Lung Disease
#1
of 39 outputs
Altmetric has tracked 25,374,647 research outputs across all sources so far. Compared to these this one has done particularly well and is in the 95th percentile: it's in the top 5% of all research outputs ever tracked by Altmetric.
So far Altmetric has tracked 2,524 research outputs from this source. They typically receive a little more attention than average, with a mean Attention Score of 5.0. This one has done particularly well, scoring higher than 98% of its peers.
Older research outputs will score higher simply because they've had more time to accumulate mentions. To account for age we can compare this Altmetric Attention Score to the 179,216 tracked outputs that were published within six weeks on either side of this one in any source. This one has done particularly well, scoring higher than 96% of its contemporaries.
We're also able to compare this research output to 39 others from the same source and published within six weeks on either side of this one. This one has done particularly well, scoring higher than 97% of its contemporaries.