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The creation of an adaptable informed consent form for research purposes to overcome national and institutional bottlenecks in ethics review: experience from rare disease registries

Overview of attention for article published in Frontiers in Medicine, April 2024
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Title
The creation of an adaptable informed consent form for research purposes to overcome national and institutional bottlenecks in ethics review: experience from rare disease registries
Published in
Frontiers in Medicine, April 2024
DOI 10.3389/fmed.2024.1384026
Pubmed ID
Authors

Annalisa Landi, Yanis Mimouni, Viviana Giannuzzi, Franz Schaefer, Annagrazia Altavilla, Spencer Gibson, Daria Julkowska

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Mendeley readers

Mendeley readers

The data shown below were compiled from readership statistics for 4 Mendeley readers of this research output. Click here to see the associated Mendeley record.

Geographical breakdown

Country Count As %
Unknown 4 100%

Demographic breakdown

Readers by professional status Count As %
Unspecified 2 50%
Other 1 25%
Student > Doctoral Student 1 25%
Readers by discipline Count As %
Unspecified 2 50%
Nursing and Health Professions 1 25%
Medicine and Dentistry 1 25%