Another 2021 study looked at challenges in transition for IEM patients. Challenges identified incl lack of time/shortage of adult metabolic MDs (amen). Successful transition include HCW+coordinator dedicated to transition + metabolic training for adult MDs
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RT @Info_Rares: Transition From Childhood to Adulthood Care in Rare Metabolic Diseases in 🇪🇺 Internists & also pediatricians are the main s…
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RT @Info_Rares: Transition From Childhood to Adulthood Care in Rare Metabolic Diseases in 🇪🇺 Internists & also pediatricians are the main s…
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RT @Info_Rares: Transition From Childhood to Adulthood Care in Rare Metabolic Diseases in 🇪🇺 Internists & also pediatricians are the main s…