@waysidewhelp @MchP66592467 One of my worst symptoms are these adrenaline surges at night. They’re sometimes occurring with hypothermia in my case—check yr temp at night if you’re experiencing this. I wonder if some of us have this https://t.co/0TVQZVS88C
@biochemmama @j_b_kennedy I have these spells during the day also-like a sudden short-lived migraine that affects the entire body, accompanied by panic. I think some of us may be developing Shapiro’s syndrome. I have yet to take my temp during the day when
@AmbrosineShitr2 I just found this also. Seems to fit my symptoms—the daytime episodes don’t occur with sweat, but disorientation/overwhelming feeling of doom. Almost like a migraine, but in the body rather than the mind. Extremely unpleasant. I hope you
New Research: A new perspective of hypothalamic disease: Shapiro's syndrome: Shapiro's syndrome (SS) is characterized by spontaneous periodic hypothermia. It occurs to patients regardless of age or sex. To date, https://t.co/7gFhlfDe6I #Neurology