TuberOus SClerosis Registry to Increase Disease Awareness: A Review on Alignment of Its Planning, Execution, and Publications With European Medicines Agency Guidelines

Overview of attention for article published in Frontiers in Neurology, May 2020

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In the top 25% of all research outputs scored by Altmetric
Good Attention Score compared to outputs of the same age (78th percentile)

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TuberOus SClerosis Registry to Increase Disease Awareness: A Review on Alignment of Its Planning, Execution, and Publications With European Medicines Agency Guidelines

MyNeuroNews, 15 May 2020

Patient registries offer a powerful and practical means of real-world data collection system for rare diseases.

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