RT @YHEC1: Sunday is #RareDiseaseDay. Read about YHEC's research on "Deriving Vignettes for the Rare Disease AADC Deficiency Using Parent,…
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Sunday is #RareDiseaseDay. Read about YHEC's research on "Deriving Vignettes for the Rare Disease AADC Deficiency Using Parent, Caregiver and Clinician Interviews to Evaluate the Impact on Health-Related Quality of Life": https://t.co/ZQhC0Gv9h5. #RareDise
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Pleased to have this paper published: you write said paper, lovely to work with co-authors sharpen it, and the journal accepts it swiftly. Typical course of all papers, naturally...! Deriving vignettes for the rare disease AADC deficiency, available here:
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Deriving Vignettes for the Rare Disease AADC Deficiency Using Parent, Caregiver and Clinician Interviews to Evaluate the Impact on Health-Related Quality of Life https://t.co/TVEUArLlRh